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[JoeClark]

hi,
my child is 10 years old and was diagnosed with Klippel Feil Syndrome at 10months old in South Africa where she was born , we now live in the U.K but find it hard to get medical help with all the new problems that come up every few months. we have had a lot of help from the Klippel feil support group worldwide and have discovered so many problems with medical help and little knowledge of the condition by doctors .we saw a GP who had no idea what KFS was. so any information is great.

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